Meet The Board!
Kelley Bedore is the CEO and founder of Williams Syndrome Family of Hope. She founded Williams Syndrome Family of Hope in December 2010 in honor of her son, Dawson. Dawson was diagnosed with Williams syndrome at the age of 2 ½ after suffering cardiac arrest due to complications associated with anesthesia. Kelley is responsible for the development and leadership of the foundation. She has a background in management and marketing as well as a medical background in ultrasound. Her responsibilities include heading up events, the annual Run for Hope, fundraising, and partnership endeavors. Kelley is a volunteer for the foundation and holds a seat on the Board of Directors. Her mission is to help Williams syndrome families through love, hope, and support. We are families helping families. Hope is an open Heart.
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Tricia Heyde is the Vice President and Chief Financial Officer for Williams Syndrome Family of Hope. She volunteers her time and love in honor of her daughter, Kendal. Kendal was diagnosed with Williams syndrome at 20 months due to developmental delays. Her diagnosis was confirmed by Microarray testing. Tricia brings her Paralegal background to the foundation as well as organizational and financial skills. She is responsible for the accounting, budget, and financial aspects of the foundation and holds a seat on the board of directors. Tricia resides in Indiana with her husband and three children. Her mission is to help bring hope to families. Differently Abled-Beautifully Perfect.
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Erika Messer is the Director of Public Relations for Williams Syndrome Family of Hope. She volunteers her time in honor of her daughter, Abby. Abby was diagnosed with Williams syndrome by FISH testing at 18 months of age due to a congenital heart defect. Abby is now 10 years old! Erika holds a degree in English Literature and has a certificate in web page design. Her responsibilities include web page maintenance, newsletters and assisting the rest of the Board with promoting fundraisers and events for the organization. Erika holds a seat on the board of directors. She resides in Indiana with her daughter. Her mission is to spread awareness of this rare disorder and assist families affected by Williams syndrome by providing emotional support. You can email her at hopefuldelights1@yahoo.com.
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Jessica Marks is the Director of Education for Williams Syndrome Family of Hope. She volunteers her time in honor of her daughter, Alli. Alli was diagnosed with Williams syndrome by FISH testing at three months of age due to numerous congenital heart defects. Jessica has an Associate’s degree in Liberal Arts and is currently working towards completing her Bachelor’s degree in Education. Jessica brings 15 years of special education knowledge to the foundation, is well versed in special education teaching strategies, student advocacy, and federal IEP law, and holds a seat on the board of directors. Jessica resides in North Carolina with her two daughters. Her mission is to educate parents, peers, and schools about Williams syndrome and advocate for fair and appropriate education for individuals affected by this rare disorder.
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Tina Ryan is the Events Coordinator for Williams Syndrome Family of Hope. Tina lives in upstate New York. She is the oldest of 7 kids and the oldest of 21 grandchildren. She went to school in Sarasota Florida for the Disney Animation program. Tina married her husband in June 1996 and they have 2 beautiful girls; Adrianna 14 and Mikayla (WS) 10. Tina is a crossing guard, stay at home mom and a Disney travel agent and also has her degree in Interior Decorating. Her mission is to help make the WSFOH great and to help families.
